PPMD 2020 Virtual Annual Conference has ended

Create Your Own Event

PPMD 2020 Virtual Annual Conference

6:00pm EDT

Welcome Address Live StreamPat Furlong (PPMD)

6:20pm EDT

COVID-19 and Re-Entry: Where Are We Now? Live StreamPat Furlong (PPMD) • Ryan Fischer (PPMD) • Jeffery Auletta, MD (Nationwide Children's Hospital) • Oren Kupfer, MD (Children's Hospital Colorado) • Joanna Johnson, parent • Joanne M Donovan, MD PhD (Catabasis)

6:50pm EDT

Break Live Stream

6:55pm EDT

PPMD Pop Quiz #1 Live StreamRyan Fischer (PPMD)

7:00pm EDT

In the Pipeline: Reducing Inflammation Live StreamEric Camino, PhD (PPMD) • Eric Hoffman, PhD (ReveraGen BioPharma) • Joanne M Donovan, MD PhD (Catabasis) • PTC Therapeutics • Gil Price, MD (Antisense Therapeutics)

7:50pm EDT

End of Day & Special Guest Performance by Cooper Jones Live StreamEric Camino, PhD (PPMD) • Ryan Fischer (PPMD)

12:00pm EDT

Lunch & Learn: Duchenne Family Assistance Program Breakout Session (Zoom)Ryan Fischer (PPMD) • Brian Denger (PPMD) • Team Joseph • Little Hercules Foundation

2:00pm EDT

Lunch & Learn: Casimir DVA - How Video Assessments Are Helping the Community Understand Duchenne Progression Breakout Session (Zoom)Pat Furlong (PPMD) • Ryan Fischer (PPMD) • Mindy Leffler (Casimir) • Casimir • Linda Lowes, PT, PhD

5:55pm EDT

Welcome to Thursday Live StreamEric Camino, PhD (PPMD) • Ryan Fischer (PPMD)

6:00pm EDT

Building Resilience: Overcoming Compassion Fatigue and Burnout Live StreamKathi Kinnett, MSN, APRN (PPMD) • Rachel Poysky, parent • Betty Vertin, parent • Gretchen Egner, parent • Natalie Truba, PhD (Nationwide Children's Hospital) • Brandon Kozar, PsyD, MBA (Nationwide Children's Hospital) • James Poysky, PhD, parent (Katy Child Psychology Associates)

7:00pm EDT

Break Live Stream

7:15pm EDT

PPMD Pop Quiz #2 Live StreamRyan Fischer (PPMD)

7:20pm EDT

In the Pipeline: Restoring Dystrophin Live StreamEric Camino, PhD (PPMD) • Richard A. Able Jr., PhD (PTC) • Niwata Yuichiro MS, RPh (Daiichi-Sankyo) • Olga Mitelman, MD (Sarepta) • Leslie Magnus, MD (NS Pharma)

8:00pm EDT

Teen & Adult Track: Virtual Zoom Social (Private Session for Teens & Adults with Duchenne 14+) Social (Zoom)Hosted by PPMD's Adult Advisory Committee (PAAC)

8:15pm EDT

End of Day Live StreamEric Camino, PhD (PPMD) • Ryan Fischer (PPMD)

2:55pm EDT

Welcome to Friday Live StreamEric Camino, PhD (PPMD) • Ryan Fischer (PPMD)

3:00pm EDT

In the Pipeline: Downstream Targets Live StreamEric Camino, PhD (PPMD) • Gerard J Marek, MD, PhD (Astellas Pharma) • Larry Markham, MD (Cumberland Pharmaceuticals) • Shabir Hasham, MD (Santhera) • Ransi Somaratne, MD FACC (Epirium Bio)

3:50pm EDT

Break Live Stream

4:00pm EDT

Duchenne Care: Endocrinology in Duchenne (Bone Health, Growth, & Puberty) Live StreamKathi Kinnett, MSN, APRN (PPMD) • Leanne Ward, MD, FRCPC (University of Ottawa) • Phil Zeitler, MD (Children's Hospital Colorado) • Rob Benjamin, MD (Duke Children's Hospital) • Adam Wechsler, PAAC Member • Colin Werth, PAAC Member • Austin Leclaire, PAAC Member

5:00pm EDT

Break Live Stream

5:20pm EDT

PPMD Pop Quiz #3 Live StreamRyan Fischer (PPMD)

5:25pm EDT

Duchenne Care: Acute Pulmonary Management Live StreamRachel Schrader, MS, APRN, CPNP-PC (PPMD) • Richard Shell, MD (Nationwide Children's Hospital) • Lisa Wolfe, MD (Northwestern Memorial Hospital) • Hank Mayer, MD (Children's Hospital of Philadelphia)

6:25pm EDT

Dinner Break Live Stream

7:10pm EDT

PPMD Pop Quiz #4 Live StreamRyan Fischer (PPMD)

7:15pm EDT

In the Pipeline: Gene Therapy Live StreamEric Camino, PhD (PPMD) • Tim Cripe, MD, PhD, FAAP (Nationwide Children's Hospital) • Elizabeth Smyth, MSN, NP (Sarepta Therapeutics) • Beth Belluscio, MD, PhD (Pfizer, Inc.) • Fulvio Mavilio, PhD (Audentes) • Carl Morris, PhD (Solid Biosciences)

8:25pm EDT

PPMD Pop Quiz #5 Live StreamRyan Fischer (PPMD)

8:30pm EDT

End of Day Live StreamEric Camino, PhD (PPMD) • Ryan Fischer (PPMD) Teen & Adult Track: Living with Duchenne (Private Session for Teens & Adults with Duchenne/Becker 14+) Teen & Adult Track (Zoom)Hosted by PPMD's Adult Advisory Committee (PAAC)

8:45pm EDT

Zoom Social Night for Moms, Dads, Grandparents & Siblings (Advance Sign Up Required) Social (Zoom)Hosted by PPMD's Sibs Connect Coordinators

9:00am EDT

Morning Yoga for Parents Live StreamMichelle Furlong

10:35am EDT

Welcome to Saturday Live StreamEric Camino, PhD (PPMD) • Ryan Fischer (PPMD)

10:40am EDT

PPMD Pop Quiz #6 Live StreamRyan Fischer (PPMD)

10:45am EDT

Duchenne Care: Caring for Female Carriers of Duchenne Live StreamPat Furlong (PPMD) • Stanley Nelson, MD (UCLA) • May Ling Mah, MD (Nationwide Children's Hospital) • Jamie Jackson, PhD (Nationwide Children's Hospital) • Kevin Flanigan, MD (Nationwide Children's Hospital)

12:00pm EDT

Lunch Break Live Stream

1:00pm EDT

Keynote: Language Shapes our Landscape Live StreamRachel Callander, Patient Experience Advocate Teen & Adult Track: Quarterbacking Your Care (Private Session for Teens & Adults with Duchenne/Becker 14+) Teen & Adult Track (Zoom)Hosted by PPMD's Adult Advisory Committee (PAAC) • Amanda Wilkison, RN, BSN (PPMD) • Patrick Moeschen (PPMD) • Kent Williams, MD (Nationwide Children’s Hospital) • Ann Blevins, RN, BSN, WCC, CWON (Cincinnati Children’s Hospital) • Vovanti Jones, MD (University of Missouri) • Dan Sheehan, MD (University of Buffalo) • Andreas Barth, MD (Kennedy Krieger Institute)

2:05pm EDT

PPMD Pop Quiz #7 Live StreamRyan Fischer (PPMD)

2:10pm EDT

In the Pipeline: Combating Fibrosis and Inflammation Live StreamEric Camino, PhD (PPMD) • Bassem Elmankabadi, MD (FibroGen) • Paolo Bettica, MD, PhD (Italfarmaco S.p.A.) • Linda Marban, PhD (Capricor Therapeutics)

2:45pm EDT

Break Live Stream

3:00pm EDT

PPMD Pop Quiz #8 Live StreamRyan Fischer (PPMD)

3:05pm EDT

Duchenne Care: The Role of Physical Medicine & Rehabilitation (PM&R) in Neuromuscular Care Live StreamRachel Schrader, MS, APRN, CPNP-PC (PPMD) • Sue Apkon, MD (Children's Hospital Colorado) • Julie Parsons, MD (Children's Hospital Colorado) • Terri Carry, PT (Children's Hospital Colorado) • Jaclyn Omura, MD (Seattle Children's Hospital) • Seth Perlman, MD (Seattle Children's Hospital) • Leslie Vogel, MSPT (Seattle Children's Hospital)

3:50pm EDT

Cannabis and Duchenne Live StreamRachel Schrader, MS, APRN, CPNP-PC (PPMD) • Sue Apkon, MD (Children's Hospital Colorado)

4:00pm EDT

Break Live Stream

4:15pm EDT

Rescuing the Heart: Why Cardiac Intervention Is So Critical Live StreamEric Camino, PhD (PPMD) • Kathi Kinnett, MSN, APRN (PPMD) • Beth McNally, MD, PhD (Northwestern) • Chet Villa, MD (Cincinnati Children's Hospital) • Chris Spurney, MD (Children's National)

5:15pm EDT

Break Live Stream

5:30pm EDT

PPMD Pop Quiz #9 Live StreamRyan Fischer (PPMD)

5:40pm EDT

Emerging Strategies in Duchenne Live StreamPat Furlong (PPMD) • Ryan Fischer (PPMD) • Kevin Flanigan, MD (Nationwide Children's Hospital) • Lee Sweeney, PhD (University of Florida) • Melissa Spencer, PhD (UCLA)

6:35pm EDT

Closing Address: Looking Ahead to 2021 Live StreamJoel Wood

6:55pm EDT

End of Conference Live StreamRyan Fischer (PPMD) • Eric Camino, PhD (PPMD)