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Featured Speakers

avatar for Pat Furlong (PPMD)

Pat Furlong (PPMD)

Parent Project Muscular Dystrophy
Founding President & CEO
avatar for Ryan Fischer (PPMD)

Ryan Fischer (PPMD)

Parent Project Muscular Dystrophy
Chief Advocacy Officer
avatar for Eric Camino, PhD (PPMD)

Eric Camino, PhD (PPMD)

Parent Project Muscular Dystrophy
Vice President, Research & Clinical Innovation
avatar for Rachel Schrader, MS, APRN, CPNP-PC (PPMD)

Rachel Schrader, MS, APRN, CPNP-PC (PPMD)

Parent Project Muscular Dystrophy
Vice President, Clinical Care & Education
avatar for Kathi Kinnett, MSN, APRN (PPMD)

Kathi Kinnett, MSN, APRN (PPMD)

Parent Project Muscular Dystrophy
Advisor, Clinical Care
avatar for Rachel Callander, Patient Experience Advocate

Rachel Callander, Patient Experience Advocate

avatar for Joel Wood

Joel Wood

The Foundation to Eradicate Duchenne
Founder and President


Speakers

C

Casimir

Casimir
avatar for Fulvio Mavilio, PhD (Audentes)

Fulvio Mavilio, PhD (Audentes)

Audentes Therapeutics
Senior Vice President, Translational Science
avatar for Mindy Leffler (Casimir)

Mindy Leffler (Casimir)

Casimir
President, Co-Founder
avatar for Joanne M Donovan, MD PhD (Catabasis)

Joanne M Donovan, MD PhD (Catabasis)

Catabasis
Chief Medical Officer
avatar for Niwata Yuichiro MS, RPh (Daiichi-Sankyo)

Niwata Yuichiro MS, RPh (Daiichi-Sankyo)

Daiichi-Sankyo
Global Team Leader DS 5141 Exon Skipping Program
avatar for Bassem Elmankabadi, MD (FibroGen)

Bassem Elmankabadi, MD (FibroGen)

FibroGen
avatar for Beth McNally, MD, PhD (Northwestern)

Beth McNally, MD, PhD (Northwestern)

Northwestern
avatar for Hosted by PPMD's Adult Advisory Committee (PAAC)

Hosted by PPMD's Adult Advisory Committee (PAAC)

Parent Project Muscular Dystrophy
avatar for Beth Belluscio, MD, PhD (Pfizer, Inc.)

Beth Belluscio, MD, PhD (Pfizer, Inc.)

Pfizer, Inc.
avatar for Amanda Wilkison, RN, BSN (PPMD)

Amanda Wilkison, RN, BSN (PPMD)

Parent Project Muscular Dystrophy
Director, Clinical Care & Education
avatar for Brian Denger (PPMD)

Brian Denger (PPMD)

Parent Project Muscular Dystrophy
Community Engagement Coordinator
avatar for Patrick Moeschen (PPMD)

Patrick Moeschen (PPMD)

Parent Project Muscular Dystrophy
Coordinator, Adult Advocacy & Engagement
avatar for Richard A. Able Jr., PhD (PTC)

Richard A. Able Jr., PhD (PTC)

PTC Therapeutics
DMD Therapeutic Area Lead, Global Medical Affairs
avatar for Shabir Hasham, MD (Santhera)

Shabir Hasham, MD (Santhera)

Santhera Pharmaceuticals
Global Program Lead
avatar for Olga Mitelman, MD (Sarepta)

Olga Mitelman, MD (Sarepta)

Sarepta Therapeutics
Head of US Medical Affairs
avatar for Melissa Spencer, PhD (UCLA)

Melissa Spencer, PhD (UCLA)

UCLA
avatar for Stanley Nelson, MD (UCLA)

Stanley Nelson, MD (UCLA)

UCLA
avatar for James Poysky, PhD, parent (Katy Child Psychology Associates)

James Poysky, PhD, parent (Katy Child Psychology Associates)

Katy Child Psychology Associates
avatar for Ransi Somaratne, MD FACC (Epirium Bio)

Ransi Somaratne, MD FACC (Epirium Bio)

Epirium Bio
avatar for Eric Hoffman, PhD (ReveraGen BioPharma)

Eric Hoffman, PhD (ReveraGen BioPharma)

ReveraGen BioPharma
avatar for Carl Morris, PhD (Solid Biosciences)

Carl Morris, PhD (Solid Biosciences)

Solid Biosciences
avatar for Dan Sheehan, MD (University of Buffalo)

Dan Sheehan, MD (University of Buffalo)

University of Buffalo
avatar for Julie Parsons, MD (Children's Hospital Colorado)

Julie Parsons, MD (Children's Hospital Colorado)

Children's Hospital Colorado
avatar for Oren Kupfer, MD (Children's Hospital Colorado)

Oren Kupfer, MD (Children's Hospital Colorado)

Children's Hospital Colorado
avatar for Phil Zeitler, MD (Children's Hospital Colorado)

Phil Zeitler, MD (Children's Hospital Colorado)

Children's Hospital Colorado
avatar for Sue Apkon, MD (Children's Hospital Colorado)

Sue Apkon, MD (Children's Hospital Colorado)

Children's Hospital Colorado
avatar for Terri Carry, PT (Children's Hospital Colorado)

Terri Carry, PT (Children's Hospital Colorado)

Children's Hospital Colorado
avatar for Hosted by PPMD's Sibs Connect Coordinators

Hosted by PPMD's Sibs Connect Coordinators

avatar for Gretchen Egner, parent

Gretchen Egner, parent

PPMD's Connect
Wisconsin Coordinator
avatar for Leona E. Filis

Leona E. Filis

The Filis Law Firm, PC
avatar for Lee Sweeney, PhD (University of Florida)

Lee Sweeney, PhD (University of Florida)

University of Florida
LH

Little Hercules Foundation

avatar for Michelle Furlong

Michelle Furlong

AB

Ann Blevins, RN, BSN, WCC, CWON (Cincinnati Children’s Hospital)

Cincinnati Children’s Hospital
avatar for Brandon Kozar, PsyD, MBA (Nationwide Children's Hospital)

Brandon Kozar, PsyD, MBA (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Chet Villa, MD (Cincinnati Children's Hospital)

Chet Villa, MD (Cincinnati Children's Hospital)

Cincinnati Children's Hospital
avatar for Jaclyn Omura, MD (Seattle Children's Hospital)

Jaclyn Omura, MD (Seattle Children's Hospital)

Seattle Children's Hospital
avatar for Jamie Jackson, PhD (Nationwide Children's Hospital)

Jamie Jackson, PhD (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Jeffery Auletta, MD (Nationwide Children's Hospital)

Jeffery Auletta, MD (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Kent Williams, MD (Nationwide Children’s Hospital)

Kent Williams, MD (Nationwide Children’s Hospital)

Nationwide Children’s Hospital
avatar for Kevin Flanigan, MD (Nationwide Children's Hospital)

Kevin Flanigan, MD (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Leslie Vogel, MSPT (Seattle Children's Hospital)

Leslie Vogel, MSPT (Seattle Children's Hospital)

Seattle Children's Hospital
avatar for Lisa Wolfe, MD (Northwestern Memorial Hospital)

Lisa Wolfe, MD (Northwestern Memorial Hospital)

Northwestern Memorial Hospital
avatar for May Ling Mah, MD (Nationwide Children's Hospital)

May Ling Mah, MD (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Natalie Truba, PhD (Nationwide Children's Hospital)

Natalie Truba, PhD (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Richard Shell, MD (Nationwide Children's Hospital)

Richard Shell, MD (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Rob Benjamin, MD (Duke Children's Hospital)

Rob Benjamin, MD (Duke Children's Hospital)

Duke Children's Hospital
avatar for Seth Perlman, MD (Seattle Children's Hospital)

Seth Perlman, MD (Seattle Children's Hospital)

Seattle Children's Hospital
avatar for Tim Cripe, MD, PhD, FAAP (Nationwide Children's Hospital)

Tim Cripe, MD, PhD, FAAP (Nationwide Children's Hospital)

Nationwide Children's Hospital
avatar for Andreas Barth, MD (Kennedy Krieger Institute)

Andreas Barth, MD (Kennedy Krieger Institute)

Kennedy Krieger Institute
avatar for Joanna Johnson, parent

Joanna Johnson, parent

Parent Project Muscular Dystrophy
Board Member
TJ

Team Joseph

avatar for Linda Lowes, PT, PhD

Linda Lowes, PT, PhD

Nationwide Children’s Hospital
Principal Investigator, Center of Gene Therapy
avatar for Adam Wechsler, PAAC Member

Adam Wechsler, PAAC Member

PPMD Adult Advisory Committee
Member
avatar for Austin Leclaire, PAAC Member

Austin Leclaire, PAAC Member

PPMD Adult Advisory Committee
Member
avatar for Colin Werth, PAAC Member

Colin Werth, PAAC Member

PPMD Adult Advisory Committee
Member
avatar for Vovanti Jones, MD (University of Missouri)

Vovanti Jones, MD (University of Missouri)

University of Missouri
avatar for Chris Spurney, MD (Children's National)

Chris Spurney, MD (Children's National)

Children's National
avatar for Leanne Ward, MD, FRCPC (University of Ottawa)

Leanne Ward, MD, FRCPC (University of Ottawa)

University of Ottawa
avatar for Gerard J Marek, MD, PhD (Astellas Pharma)

Gerard J Marek, MD, PhD (Astellas Pharma)

Astellas Pharma
avatar for Leslie Magnus, MD (NS Pharma)

Leslie Magnus, MD (NS Pharma)

NS Pharma
avatar for Larry Markham, MD (Cumberland Pharmaceuticals)

Larry Markham, MD (Cumberland Pharmaceuticals)

Cumberland Pharmaceuticals
avatar for Hank Mayer, MD (Children's Hospital of Philadelphia)

Hank Mayer, MD (Children's Hospital of Philadelphia)

Children's Hospital of Philadelphia
avatar for Rachel Poysky, parent

Rachel Poysky, parent

PPMD's Connect
South Texas Coordinator
avatar for Paolo Bettica, MD, PhD (Italfarmaco S.p.A.)

Paolo Bettica, MD, PhD (Italfarmaco S.p.A.)

Italfarmaco S.p.A.
PT

PTC Therapeutics

PTC Therapeutics
ES

Elizabeth Smyth, MSN, NP (Sarepta Therapeutics)

Sarepta Therapeutics
avatar for Gil Price, MD (Antisense Therapeutics)

Gil Price, MD (Antisense Therapeutics)

Antisense Therapeutics
Chief Medical Officer
avatar for Linda Marban, PhD (Capricor Therapeutics)

Linda Marban, PhD (Capricor Therapeutics)

Capricor Therapeutics
avatar for Betty Vertin, parent

Betty Vertin, parent

PPMD's Connect
Nebraska Coordinator